June 24, 2006 - Surgery is over...

Hello Everyone! Erik just came out of surgery and all went well. They removed his central line and so far so good. Please pray for him to stay infection free and pray that the line was the only source causing the infection! Thanks for everything! Erik's Family //--> allenkeaGuest Posted: Wed Jul 12, 2006 8:20 pm Post subject: hey everybody!! I hope everyone is doing well, i haven't talked to you all in a while but i think about all of ya'll alot. I'am glad everything is going well with Erik. I hope to see ya'll soon. I love you all and you are in our prayers.

June 22, 2006 - Erik is at Duke

Hello Everyone! Well . . we are at Duke. Last week, Erik had a fever - not high but any fever is unusual for him. The second day of the fever we went to our pediatrician who checked him out. All was clear and the nex day he was fever free. This past Tuesday night, we woke to find Erik with a fever. This time it was higher than before. We gave him motrin and settled him down. The fever remained high into the morning so we called the doctor and they recommended we bring him in to get checked out. They kept him overnight for observation. He remained fever free and the tests checked out fine. We thought we were going home today but around lunch time they told us that one test indicated infection. They are not sure what type of infection he has so the decision was made to treat him for 48 hours with antibiotics while we wait for his other test results. The thought is that maybe his central (IV) line is infected. If this is the case they will have to take it out. This would not be so bad and it would be much better news than something with his surgical site!! The girls were happy because with the central line out, we can start putting him on his belly more and we can also take him to the pool! There is a silver lining to every cloud and we are glad our children also see things that way. Well, we will let you know when we hear more but for now we ask that you say a prayer for Erik when he comes to mind. We still need prayer asking God to allow the seizures to cease. Also, we ask that his body be cleared from this infection and that he not pick up any other infection or problem while here. Thanks to all of you for continuing to carry us through these times with prayer and support! Love in Christ, Erik's Family

June 12, 2006 Erik is 4!!!!!!!!!!!

Greetings Everyone! All is going well here. Erik continues to amaze us through his progress! He is enjoying his therapy and his seizures have slowed down. Also, the new medication appears to be working well for him. His seizures are less frequent, he does not seem to be overly sleepy from it and he seems to be tolerating the medication well. We are still adjusting his dose with the goal of eliminating seizure activity and we are reducing some of his other medications too. Keep us in your prayers as we go forward! Erik and Nick celebrated their 4th birthday Sunday! It seems so unbelievable! We have been so blessed and really did not know where we would be this time last year! Praise God for continuing to heal and restore Erik. Erik has been wonderful the past 3 days! He is reminding us of his "old self". He looks so happy and smiles and verbalizes alot. This is what he used to do all of the time! One fun thing that has happened is that we recently received funding from a company who purchased therapy equipment for Erik. He now has a therapy ball, benches, a swing, and many other items to assist him with building up his strength. This will certainly make therapy more productive and enjoyable! Please continue to pray for Erik's physicians, for Erik's seizures to cease and for continued healing and strength for Erik. Take care and THANK YOU!!!!! Erik's Family