April 17, 2010 - We are home!

Hello Everyone! We are home! We arrived home Thursday evening and have been settling back into a routine. We cannot express adequate thanks for all that has been done for us - prayers, meals for the family, assistance with the kids, notes of encouragement, financial support, and more! It is SOOOOOOOOOO good to have our family all under the same roof again! The time passed quickly and Erik did really well. Interesting, we increased one of Erik's medications that typically makes him sleepy and even with this he appears more alert and engaged. As with the last round of treatment, some results are often seen during or right after treatment but also in the 3-6 months post treatment. We will keep a close eye out, note in any comments shared from Erik's therapists and teachers, and will share his progress with you. Erik will return to school on Monday (4/19) and he will have a different schedule. He will be home on Tuesdays and Fridays to allow him to receive much needed OT/Speech/feeding and PT services. With his current school schedule (on the bus at 8:15am and home at 4:30pm) we have not been successful finding therepists who can come that late in the day and weekends are not an option. Pray that this schedule will work well for Erik and those caring for and instructing him. The ramp for the house is not yet constructed. Team is still working to secure permits, etc. to get things coing. Hopefully it will be soon as until we have this it is a real challenge getting Erik out of the home because his temporary aluminum ramp we have broke. We know God will see us through this but lift us in prayer if this need comes to mind. Thanks again for all of the kindness and love you have shown us during this challenging time. Love in Christ, Erik's Family

April 5, 2010 - What a week!

Hello. Hope all of you are doing well. Last week was a week of "ups and downs" with many more "ups" than downs . . . thank God! Erik started the week with some seizure activity but it only lasted 2 days . . . prayer works! The rest of the week went well with treatment. We have settled into a nice routine. We had a nice surprise this week. We contacted Give Kids the World (where we stayed for our Make-A-Wish trip: http://www.gktw.org/corporateHeroes.asp?a=4&page=wdw) and Paramount Carowinds to see if we could get discount tickets to the park for a day when the family are all here. We are 20 minutes from the park and it seemed like a shame to not try to go. We asked about special rates for Make-A-Wish families and they gave us 7 free passes for the day! What a wonderful surprise! We did not expect that but ate breakfast and headed to the park. It just opened last weekend and local Spring Break is this coming week so it was not that crowded and we had a wonderful time! Glad we asked! We finished treatment #25 today to only 15 more to go! Time is really passing quickly. Please continue to keep us in your prayers. Love in Christ, Erik's Family