January 13, 2011 - Happy New Year!

Hello Everyone. Hope the holidays were great and that the new year is starting out well. Erik had a good Christmas and we are pleased he did not have any seizure activity on Christmas day. Past month or so have been challenging with seizure activity. Very few days lately without recognizable seizure activity. Makes things rough because even if they are brief, they exhaust him and make it difficult for him to eat, make him less responsive, and just bum us out! We have had 2 adjustments to his VNS which have possible reduced seizure activity down to 1 time per day (that we see) but we are suspicious that he is having them when we are not aware - especially at night. He has been very tired all day long for the past 5 days and we just don't see anything that could be the cause. Sleeping all night, no medication changes, etc. We are praying for a solution so keep this in mind as we know God will carry us through this. We are asking for the discernment to know what actions we should take. Erik has been doing well in school and seems to really enjoy his instructors and classmates this year. They are working with assistive technology and encouraging him to make choices which he appears to be intentionally doing! This is great to see as it does appear he knows what he is doing and is happy to be able to communicate with us through the tools available. Thanks to all of you for continuing to keep us in your prayers . . . Love in Christ, Erik's Family