May 18, 2007 - Making Changes...

Hello All! We are doing well these days. the latest update is that we have learned that the doctors believe one of Erik's medications is causing his low sodium. This is disappointing in that the medication they are suspecting is the one that has proven to best control his seizures. So . . . what this means is that we will begin the process of taking him off of one and putting him on another. The new one is interesting to think about in that it is similar to the one we will be taking him off of without the sodium side effect BUT if there are side effects, they can be life threatening. This will necessitate us keeping a closer eye on him for any symptoms of a potential problem such as a rash until we reach therapeutic levels. If he develops any type of rash we have been instructed to get him to a doctor ASAP. We are proceeding with the goal of an effective medication change with no side effects and would like to ask that you pray with us for this to be the change we have been waiting for to control his sodium and seizures. The introduction of this medication will take ~2 months. He has been content these days with an increased appetite and interest in things going on around him. It is such a blessing to see him interacting with his siblings and caretakers and demanding their attention! Yeah for Erik! We pray that everyone will enjoy the beautiful weekend ahead! Love in Christ, Erik's Family