March 26, 2010 - Working out the "kinks" . . .

Hello Everyone! This week has passed quickly! We arrived Saturday afternoon and settled into the apartment which is nice for us and an 8-10 minute walk for treatment. Local friends from our home town met us here and brought a glider and a single bed for us to use with Erik which has worked out perfectly! Monday morning we met with the doctor at 8am and awaited our initial treatment scheduled for 9am. Part of the process is to check the pressure the VNS implant Erik has to understand the pressure range that is safe. Well . . . who knew that the versions before and after Erik's versions had been tested but Erik's model had not! This required that we delay treatment until we understood the safe level. We returned to the center at 2pm and they had reached he sales rep/manufacturer and we were ready to go. We were happy that the center offered to stay late and allow us to return at 6 for a second treatment so we would not get off schedule. Whew! Erik also continued to have seizures and actually had 2 on Tuesday/Wednesday. We made a medication change and yesterday he remained seizure free and so far so good for today. Please continue to keep us in your prayers that the seizures will not return . . . EVER!!!!! We have several local nurses who are filling in open shifts for us on the schedule which has been nice. So far they are good with Erik and are jumping into the routine well. Lots of other little "bumps" along the way this week but we are comfortable settling into a workable routine now which is welcomed! We have felt lifted in prayer this week and are most thankful for safe travel and for Erik's stability! We Please continue to keep us in your prayers and we look forward to sharing Erik's progress with you. Love in Christ, Erik's Family